Resources
Advocacy
Adult Congenital Heart Association www.achaheart.org
American Heart Association www.heart.org
CarePages www.carepages.com
Children’s Cardiomyopathy Foundation www.childrenscardiomyopathy.org
Children’s Heart Foundation www.childrensheartfoundation.org
Congenital Heart Information Network www.tchin.org
Heart and Sole, Inc. www.heartandsoleinc.org
Hearts of Hope www.heartsofhope.us
Heart Heroes www.heartherocapes.com
Kids with Heart National Association for Children’s Heart Disorders www.kidswithheart.org
Make-A-Wish Foundation www.wish.org
Mended Little Hearts www.mendedhearts.org
Saving Little Hearts www.savinglittlehearts.com
Patient/Family Education
Congenital Heart Defects http://www.congenitalheartdefects.com/
Congenital Heart Documentary http://www.congenitalheartdocumentary.com/
Children’s Heart Institute www.childrensheartinstitute.org
Insurance/Disability
Health Insurance Resource Center www.healthinsurance.org/risk_pools
Bereavement
Spirit Lyric http://www.spiritlyric.com
Griefhaven www.griefhaven.org
Angel Hugs www.angelfire.com/or/angelhugs
Bereaved Parents of the USA www.bereavedparentsusa.org
The Compassionate Friends www.compassionatefriends.org
Music
Spirit Lyric Share the Song http://www.spiritlyric.com/song.html
Griefhaven Linda Ronstat Goodbye My Friend www.griefhaven.org/music/music-lindaronstat.html
Griefhaven Simon and Garfunkel Bridge Over Troubled Waters www.griefhaven.org/music/brigdeover.html
