Resources

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Advocacy

Adult Congenital Heart Association www.achaheart.org

American Heart Association www.heart.org

CarePages www.carepages.com

Children’s Cardiomyopathy Foundation www.childrenscardiomyopathy.org

Children’s Heart Foundation www.childrensheartfoundation.org

Congenital Heart Information Network www.tchin.org

Heart and Sole, Inc. www.heartandsoleinc.org

Hearts of Hope www.heartsofhope.us

Heart Heroes www.heartherocapes.com

Kids with Heart National Association for Children’s Heart Disorders www.kidswithheart.org

Make-A-Wish Foundation www.wish.org

Mended Little Hearts www.mendedhearts.org

Saving Little Hearts www.savinglittlehearts.com

 

Patient/Family Education

Congenital Heart Defects  www.congenitalheartdefects.com/

Congenital Heart Documentary  www.congenitalheartdocumentary.com/

Children’s Heart Institute www.childrensheartinstitute.org

The Society for Cardiovascular Angiography and Interventions www.scai.org

SecondsCount.Org www.secondscount.org

 

 

Insurance/Disability

Health Insurance Resource Center www.healthinsurance.org/risk_pools

 

Bereavement

Spirit Lyric http://www.spiritlyric.com

Griefhaven www.griefhaven.org

Angel Hugs www.angelfire.com/or/angelhugs

Bereaved Parents of the USA www.bereavedparentsusa.org

The Compassionate Friends www.compassionatefriends.org

 

Music

Spirit Lyric Share the Song http://www.spiritlyric.com/song.html

Griefhaven Linda Ronstat Goodbye My Friend www.griefhaven.org/music/music-lindaronstat.html

Griefhaven Simon and Garfunkel Bridge Over Troubled Waters www.griefhaven.org/music/brigdeover.html